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Endometrial cancer at a late age
Gynecologic Cancers | Last Active: Dec 3 7:06pm | Replies (67)Comment receiving replies
@inquirer hi my cancer was caught very early on a routine Pap smear I was told that it was a tiny spec that had not penetrated the uterine wall .. there was no cancer found anywhere else .. no lymph nodes .. chemotherapy was not recommended which I was happy to hear ... 18 months later it recurred in my abdomen on my omentum.. I was told that chemo was necessary and I had 6 treatments and by end of the treatments my scan was clean NED.. I continued with 30 min infusions of Herceptin for 18 months and when my CA125 started to trend up a PET scan showed very early node activity.. I began treatment with Enhertu and I am once again cancer free ... I hope that this new treatment which is a targeted rather than systematic chemo with fewer side effects keeps the cancer at bay forever !
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@alohman08 Thank you. Your story is mine; a tiny spot that hadn't penetrated the uterine wall. Later, a second opinion at MSK said a few cells did penetrate the wall. That was disappointing but still my surgeon and MSK recommended "wait and see" over chemo. I was relieved but when I read stories like yours and others, I'm not so sure. Guess I'll always live in fear. On another site, a Stage 1a person said hers recurred 6 years later (she's now in hospice), another said 8, and another said 12 years later. I would have thought after 2 years we'd be in the clear, but seems we never really know. It's a frustrating and exhausting thought! I'm so glad they caught yours early each and every time. You must have a very good team. Hoping the same for myself, if it happens.