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Pneumonia, MAC and Aspergillus ?!?

MAC & Bronchiectasis | Last Active: Nov 19 3:13pm | Replies (20)

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Profile picture for Sue, Volunteer Mentor @sueinmn

@jenniferlp Are you nebulizing with saline or albuterol, doing any airway, or otherwise trying to clear your lungs without antibiotics? If your doc or NP has not recommended these, they are not familiar with treating MAC and Bronchiectasis.

As to which infection causes coughing, they both do, as does bronchiectasis itself.

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Replies to "@jenniferlp Are you nebulizing with saline or albuterol, doing any airway, or otherwise trying to clear..."

@sueinmn No, they have not recommended any of these. I followed the links you sent me Sue and also did a search for someone who is versed in MAC in Los Angeles, I found a Dr. (a pulmonologist) and called, his assistant doesn't know if he is taking on any new patients, he doesn't do 'second opinions'. I hope he will take me on. I was honest with her, I need someone who is knowledgeable about this disease. He is out for another week, she will let me know. Paws crossed, he will see me. I think my Dr.'s clearly have limited knowledge and I think my questions have become annoying to them and that's all i will say about that...no indictment, but I would like to see someone with more knowledge so that I may understand what I am dealing with. Thank you Sue for your expertise.

@sueinmn I am in touch with a second person at the Bronchiectasis & NTM Association who has given me much information, for which I am most grateful. I also have found another pulmonologist who is versed in MAC, etc. I will be seeing him. Again, thank you so much for your guidance. By the way, I am not taking those three antibiotics and have also become aware of the recently approved med-Brin Supri. Happy Thanksgiving.