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44yr PSA180 Gleason9 non-metastatic. Surgery or Treatment?
Prostate Cancer | Last Active: Nov 12 1:32pm | Replies (122)Comment receiving replies
Hi to all in this beautiful gang,
UPDATE:
So as you all remember i started this challenge with a PSA of 180.
After 40 days on Bicalutamide 50mg, and the day before my Lupron 11.25g 3month-depot shot, i redid my PSA. I was down to 33.
Now I am off the Bicalutamide, and 30 days after the Lupron belly shot, took my PSA readings again:
- free PSA: 0.16ng/ml
- PSA: 4.41 ng/ml
- qPSA: 0.04%
- Testosterone: < 0.17nmol/l (< 4.9ng/Dl)
I am not sure if this is a good result or not (have not discussed the results with my doc yet) but I am pretty happy with the drop in PSA.
Besides the medication, which honestly saying, it has not exhibited any side effects so far, I am super stoked about my change in diet, which has also lead to an increase in energy, contrary to what one might believe based on my testosterone level.
Diet wise, I have dropped all that is sugar (with the exception of the natural sugar from the fruits I eat). I have eliminated all red meats (and I mean all). No more dairy (i found plenty of plant based substitutes). There are plenty of options in Soy, Almonds, Oat milks, as well as a peas based milk substitute. All of them of course without sugar. No alcohol, but that somewhat already happening before I got diagnosed.
I still eat meat (poultry and fish). Increased the intake of fruits and veggies (all in raw form) and I have to say that I become quite fond of raw broccoli :). Tofu has also become a main ingredient in my salads and some meat substitutes.
On top of that and I am tracking at least 12K steps per day, throughout my various daily activities.
I have also started a home work out program (20-30 minutes/day) with no equipment, just a mat, but when i was on vacation I substituted the mat with a beach towel.
That being said I will redo my PSA beginning of December and January, for my 2 and 3 month mark on Lupron. If the values continue to drop, which i am quite confident they will, I will redo my mpMRI and PSMA PET CT scan.
Based on the results of these two scans, I will then most likely schedule my RARP.
Overall, I am feeling really good both physically and mentally.
Feel free to share your opinions and thought on my progress.
The main thing is to stay focused and remain positive.
I know you all can do it.
Thank you for taking the time to read my update and I look forward to hearing from you all.
All the best,
Dinu
Replies to "Hi to all in this beautiful gang, UPDATE: So as you all remember i started this..."
@dinu
Great to hear how things are going for you. I always had my Lupron shot in the hip, There’s no reason they have to give it in the belly. Have you asked about getting Orgovyx instead of Lupron? A lot easier to take and fewer side effects.
Your PSA should continue to drop, It may become undetectable.
Make sure to get a lot of protein, Chicken is a good way to do it. My son will eat a couple of extra legs and thighs just to get more protein, he’s a personal trainer.
You really have to get weights involved in your training. Your muscles will deteriorate pretty quickly. You will get a belly and you want to do sit ups and weightlifting to keep your muscles strong. Look for videos from Robert newton PHD Australia. He works with prostate cancer patients to keep them healthy, doing exercises, and weightlifting. He just gave a good talk at the PCRI conference a couple of weeks ago.
@dinu
Those are great numbers. I had a 138 PSA at diagnosis lowered to 80 with bicalutimide then rarp but still had a 9.5 six weeks after. Lupron and radiation got me to undetectable pretty quickly. Sounds like you are on an even better path to undetectable levels. Maybe even avoiding radiation. Great job on your diet, obviously helping. May have to think about it myself. Thanks for the update and good luck!! Brett
@dinu - good stuff!!! Keep up your efforts… YOU are worth it! I didn’t see if you’re looking into having a decipher analysis done on your tumor? But I recommend it. I discovered I was “blessed” with a high decipher score (.97), which indicates an aggressive cancer. I’ve had prostatectomy (in 12/21), and after some residual cancer was discovered on the bladder neck, did hormone therapy and 40+ zaps to the prostate bed and a squirrelly lymph node… was undetectable for almost a year and then it came back with a vengeance this past summer. Over 30 Mets throughout various bones… just finished a 6 session round of chemo and I’m continuing hormone therapy — we are attempting to manage it, and for the time being it’s having great effect.
Again - keep up your battle - love the advice on eating healthy!
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@dinu
Those are great results and what is even more fantastic is that YOU are feeling great, energetic and in control of this disease - yeayyyyyy !!! : ))) I also want to commend you for your lifestyle changes - they will help you immensely on a long run. My husband had RP and on our last meeting with surgeon we were told that the best thing one personally can do for PC suppression (beside standard treatments , of course) is to stay away from red meat, eggs and milk products, which we do and have no problems doing it- more so, we discovered so many new fantastic plant based products inclooding vegan mayonnaise which is divine ; ).
Thanks for the update - it is always nice to see somebody having successful treatment and may your RP be as uneventful as was you preparation for it and may your PC soon be eradicated 100 % !