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← Return to Severe pain eating 7 weeks post-RT
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Severe pain eating 7 weeks post-RT
Head & Neck Cancer | Last Active: 3 hours ago | Replies (45)Comment receiving replies
@ranchroad First, wonderful that your scans are clear!! I don't get my first post treatment scan until December 4th.
Second, congrats on eating some food successfully. I tried a piece of sausage yesterday which set off about 6 or 7 blisters. But low level pain. I suspect it was the pepper in the sausage. I am extremely sensitive to pepper.
My doctors didn't think too much of the blisters either. They just encouraged me to keep eating according to my tolerance and seemed sure that eventually they would quit appearing. We'll see how it goes.
By the way, thanks so much for posting about the dose volume histogram. I've asked for my information. Right now I have almost no saliva, which is as bothersome to me as the blisters. It will be good to know how much radiation was delivered to my salivary glands so that I can manage my expectations.
Wishing you continued healing!
Replies to "@ranchroad First, wonderful that your scans are clear!! I don't get my first post treatment scan..."
I would ask your radiologist how much radiation you received measured in Gy (Gray). Standard care was for head & neck had been 70 Gy but there has been a big deescalation in recent years.
And the kind of radiation you received- Photon or Proton.
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@metsgirl I also just met with my ENT to get another opinion. He’s not a young doctor and had never really seen this. He prescribed me a compounded mouthwash with a steroid ingredient to see if that helps (basically magic mouthwash without the lidocaine). Otherwise the advice was to make do and get through it. I was never prescribed magic mouthwash during treatment, so I’ll give it a go and let you know if it helps this