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Replies to "@justwow Hello, if it will be a help let me pass you my experience; I had..."
Head & Neck Cancer | Last Active: 14 minutes ago | Replies (62)
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Replies to "@justwow Hello, if it will be a help let me pass you my experience; I had..."
@burakb
May I ask where you were treated? Was it your neck?
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@burakb
@burakb
First, I am so, so sorry this has happened to you. Is there hope for regaining use of your arms? I pray there is!
Each time I think I’m brave enough to commit to the neck dissection, I end up greatly terrified. I read medical studies showing a very high percentage of people who undergone this surgery have shoulder pain, mobility issues, shoulder droop, winging, facial paralysis, lip droop… sure, *some of it gets better with time (12 to 18 months) but not all.
I thought about Proton therapy and its many side effects…. I’ll make it past the mouth sores. And losing my taste doesn’t bother me, it happened once before and lasted a year after taking medication for a fungal nail infection… the Dr said “don’t worry , it’s extremely rare for people to lose their taste”, and of course it happened to me 😮💨😂
And then I read your post and just cried - for you and for me…
My current doctor wants me to treat very very soon and not sit on this.
I know I have to do something