Thank you so very much for such an informative and helpful message. I've read a lot of information about all the possible/probable side effects and although they are very helpful, I'm anxious and nearing exhaustion just thinking about what I need to do. I'm involved with the M.D.Anderson Cancer Center so I know the medical personnel are highly qualified -- I have no concerns about competency. These folks are friendly and knowledgeable and efficient. The anxiety I have so far is related to not knowing the actual process and what side effects I'll have, as well as following all the recommendations I've read. The facial exercises, the swallowing exercises, the fluoride treatments, etc. all seem very overwhelming. I like the idea of starting my own discussion group although I'm not sure how to do that. I appreciate your giving me an idea of the progression of side effects. Even though its overwhelming, it's also helpful so I can become accustomed to what might happen.
Thanks again, Pat