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rozie83 avatar

Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (76)

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@rozie83
Hopefully you'll hear back from your allergist. I don't really understand why they would tell you not to have the IVIG infusions because of side effects. I've been having them monthly for over 5 years. I've since retired, but when I worked each year I would apply for FMLA in case I needed to miss work for a day or so after the infusions. I honestly don't recall having to miss work more than once because of it. Yes, I have had hives (once) and for the first few years would experience a low grade fever, maybe headache and chills the evening of the infusion, but all I would do is take another dose of the pre-meds(Tylenol and Benadryl, taken 30 minutes prior to the infusion) and go to bed, I would wake up feeling like nothing happened.
Rarely do I need to repeat the premeds after the infusions. In fact, I realized around 3 hours into my last one that I forgot to take them. I had no adverse effects at all.
If your allergist is also an immunologist (most/many are) I would follow their advice. Prior to being checked for an immune deficiency I was in and out of the hospital for years with respiratory infections. It has saved my life.j

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Replies to "@rozie83 Hopefully you'll hear back from your allergist. I don't really understand why they would tell..."

@kpger Thank you so much for you input. I have an appointment with my primary care doctor who has been opposed to the infusion until now. I have not been sick except for covid a few years ago. My numbers are getting worse, so maybe I will reconsider. I really appreciate your telling me about your experience. Who gives the injection to you? My allergist is an immunologist. I did see an immunologist at NJH and he agreed I shouldn't do it. I'm 84 years old and think I've probably had this deficiency for years. Have to go. I'm keeping your note. Roz