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Visit to National Jewish Health in Denver, CO
MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (76)Comment receiving replies
No one has recommended another solution. The question I didn't ask is what might happen if I don't do the infusion. I have an appointment with my primary doc next week. She had initially told me not to do the infusion but then when the number dropped again, she said ok. They said not to get it since I haven't had pneumonia in the past ten years and the side effects are bad and can have bad side effects. I put a call into my allergist here and haven't heard from her again. I have to follow up on that.
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@rozie83
Hopefully you'll hear back from your allergist. I don't really understand why they would tell you not to have the IVIG infusions because of side effects. I've been having them monthly for over 5 years. I've since retired, but when I worked each year I would apply for FMLA in case I needed to miss work for a day or so after the infusions. I honestly don't recall having to miss work more than once because of it. Yes, I have had hives (once) and for the first few years would experience a low grade fever, maybe headache and chills the evening of the infusion, but all I would do is take another dose of the pre-meds(Tylenol and Benadryl, taken 30 minutes prior to the infusion) and go to bed, I would wake up feeling like nothing happened.
Rarely do I need to repeat the premeds after the infusions. In fact, I realized around 3 hours into my last one that I forgot to take them. I had no adverse effects at all.
If your allergist is also an immunologist (most/many are) I would follow their advice. Prior to being checked for an immune deficiency I was in and out of the hospital for years with respiratory infections. It has saved my life.j