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@santosha Xcopri was working wonders for me, besides the fact it made me dead tired during the day, even when I was taking it at night. However, I am on 400mg, which my neuro tells me is the highest dose. But, lately a lot more of my typical focal aware seizures have been creeping in, coupled with increased memory loss. But I couldn’t say if that was a failure of the Xcopri, or other issues related to my prior brain surgery, which my neuro is looking into more. I did Carbatrol for many years, but it honestly never worked well. Keppra, Tegretol, lamictal, I topimax, clonazepam, and I know there were others, but my memory is terrible

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Replies to "@santosha Xcopri was working wonders for me, besides the fact it made me dead tired during..."

Hi @kariabrown
Thank you so much for sharing that! I really appreciate you opening up.
I'm sorry to hear your focal aware seizures have been making a comeback lately. I know how frustrating that can be—I've been through it myself.
Memory struggles are such a common challenge with epilepsy. I deal with them too because of my temporal lobe epilepsy. It's hard to know sometimes whether it's the seizures themselves or the medications, or probably a bit of both. You're definitely not alone in this.
I'm curious about your surgery, if you're comfortable sharing— which area of the brain was involved?
I hope you get some answers soon about why these seizures are returning. Sometimes life changes or stress can play a role. Has anything shifted for you recently, or have things been particularly stressful?
Sending you my encouragements as you work through this with your neurologist! 🙌💜
Chris