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HPV Throat Cancer

Head & Neck Cancer | Last Active: 23 minutes ago | Replies (62)

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@metsgirl
Thank you for responding to my post - I just requested an MRI with contrast because the wording /descriptions in the findings of the CT and Pet scans differ. There may be more involvement - (though I pray to god not)
Anyway, I’m in process of switching insurance and will probably get whatever is recommended at my local center. I hope to find out more soon.

How did you handle everything emotionally? The first week I think I was just stunned. I took it off the chin… yesterday I had a meltdown with tears, and today I’ve withdrawn feeling depressed.
Que sera, sera.

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Replies to "@metsgirl Thank you for responding to my post - I just requested an MRI with contrast..."

@justwow I was stunned when I was first diagnosed via CT scan and biopsy as I was asymptomatic. It took almost a month for me to see a local radiology oncologist. During that time my emotions were a roller coaster. The oncologist was very blunt about his treatment plan which included a prophylactic feeding tube. Something did not sit right with me after that. I shifted from being upset about my diagnosis and treatment to being proactive in doing research to choose the best treatment and care team for me. I switched insurance to a PPO that allowed me to be treated out of town. I set up consultations with 5 top cancer centers and found out about proton therapy. My focus became on how treatable and curable this cancer is. I know the side effects are pretty miserable, but there is a positive end to focus on. You get through treatment day by day. It will end and you will improve.

Many folks on here went through treatment before the advances we can now take advantage of.

If you are a person of faith lean into that. If not, take comfort in the science. Don't focus on the short term pain and discomfort. It is truly doable. I expected worse. My goals were to go to treatment, follow my care team's instructions and rest as much as possible. I ultimately went out of town for treatment and stayed in a hotel for 2 months.

Just get your final diagnosis and treatment plan settled to your satisfaction and move forward. We are all here to provide what support we can
God bless!