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HPV Throat Cancer

Head & Neck Cancer | Last Active: 23 minutes ago | Replies (62)

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@justwow I am 8.5 weeks out from both chemotherapy and 7 weeks/35 treatments of proton therapy for stage 2 tonsil cancer with one lymph node affected on each side of my neck. Surgery was not recommended. lost most all my taste by week 3. I am just now regaining some taste. I still do not have much of any saliva. I experienced mouth sores and some associated pain. The radiation did cause the skin on the outside of my neck to burn and scab around the 5th week of treatment. I followed my team's skin care directions and it healed by the end of treatment and has been and still is perfectly normal in appearance. I do not believe that you should experience any scarring from proton treatments.

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Replies to "@justwow I am 8.5 weeks out from both chemotherapy and 7 weeks/35 treatments of proton therapy..."

@metsgirl
Thank you for responding to my post - I just requested an MRI with contrast because the wording /descriptions in the findings of the CT and Pet scans differ. There may be more involvement - (though I pray to god not)
Anyway, I’m in process of switching insurance and will probably get whatever is recommended at my local center. I hope to find out more soon.

How did you handle everything emotionally? The first week I think I was just stunned. I took it off the chin… yesterday I had a meltdown with tears, and today I’ve withdrawn feeling depressed.
Que sera, sera.