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Breast Cancer | Last Active: 2 days ago | Replies (7)
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I am using an armband with special app to help me pace my energy. I have fibromyalgia and ME/CFS (chronic fatigue syndrome) i thought i was pacing well before (30 yrs experience!) but with the app i learned a lot more about my body, especially since everything is on high alert with the cancer treatments. Now I can avoid the really debilitating symptoms of flares from overdoing.
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Replies to "I am using an armband with special app to help me pace my energy. I have..."
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@rbarber100
I am sorry you have had this fibromialgia and CFS but glad to hear about this issue. My doctors have never mentioned that the CFS could be causing my horrible side effects with Tamoxifen. I have told them during office visit but they never manage to add that to my official health report and I think they (meaning my bc team) should be sure to get that on record. It is frustrating. I had to stop the tamoxifen after taking it 10 weeks. That was in June and I still am having the side effects for some hours daily. That's better than 24/7 as they were for the whole time I took the pill and the several months after taking were still 24/7. I'm frustrated and angry. I have an appointment with my internal medicine doctor Friday and while he's not on the official cancer team I keep him informed. There will be much discussion with him on the subject Friday.