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DiscussionI am looking for others diagnosed with microscopic colitis
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Replies to "@1961deb That’s a huge weight loss! That is also why I keep at least 3 different..."
@ndough Thank you for sharing this information. I have been told that my CC was caused by the MS drug I was taking. And it seems like each autoimmune problem is contradictory to the others. It’s so frustrating. They tried me on a different drug, and that made me instantly worse. Budesonide keeps it under control while I’m on it. One more month for taking 6 mg and then we drop to 3 for 3 months. I pray at that time, it will be in remission. But so far remission is 4 months max. So far I have osteopenia which I have had for years. I had to give up piano because my spine hurt too bad to sit up straight and play. That was disappointing, I understand how you must miss playing. I also have several clothing sizes so I have something to fit. Have you found something that is not corticosteroids?
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@ndough OMG! I have a classical piano degree and osteoporosis! What do you do?! I don't want to lose my ability to play! But I don't want chronic diarrhea either! Ahhhh! Budesonide has been wonderful. Are there alternatives?