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@1961deb That’s a huge weight loss! That is also why I keep at least 3 different sizes of clothes on hand so I usually have something to wear. I was warned away from taking the Budesonide because of the other autoimmune issues I have. Also, those warnings are on the pharmacy sheets that come with the drug. My pharmacist actually called me at home when my GI called the RX in because the warnings said: If you are female, do not take if you are over 60 (I was). Do not take if you have osteoporosis or osteoporosis (I do). Do not take if you have Thyroiditis, especially Hashimotos. Do not take if you have any other autoimmune disorders. Budesonide is a corticosteroid steroid and will eat away at your bones. That is the least destructive it can be. The half life of this steroid is longer than your full life. I had to have the entire right basal carpal joint (thumb) on my right hand rebuilt from just taking 2 doses of steroids. It had started eating away at the joints in my hand where I had begun to develop OA. I couldn’t resume my piano and now I cannot do anything with that hand. I really really hate giving advice, but I suggest getting another GI. Preferably a woman. I think it’s horrible what you are going through. Mine came out of remission 11/1 and is going full blast right now. How on earth do doctors expect us to make an office visit when we can’t get more that 2 feet away from the bathroom is beyond me.

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Replies to "@1961deb That’s a huge weight loss! That is also why I keep at least 3 different..."

@ndough OMG! I have a classical piano degree and osteoporosis! What do you do?! I don't want to lose my ability to play! But I don't want chronic diarrhea either! Ahhhh! Budesonide has been wonderful. Are there alternatives?

@ndough Thank you for sharing this information. I have been told that my CC was caused by the MS drug I was taking. And it seems like each autoimmune problem is contradictory to the others. It’s so frustrating. They tried me on a different drug, and that made me instantly worse. Budesonide keeps it under control while I’m on it. One more month for taking 6 mg and then we drop to 3 for 3 months. I pray at that time, it will be in remission. But so far remission is 4 months max. So far I have osteopenia which I have had for years. I had to give up piano because my spine hurt too bad to sit up straight and play. That was disappointing, I understand how you must miss playing. I also have several clothing sizes so I have something to fit. Have you found something that is not corticosteroids?