1. < Inflammatory Bowel Disease (IBD)
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microscopic (lymphocytic) colitis

Posted by ferguson23 @ferguson23, Nov 9, 2022

What is the best strategy for handling this rare(?) condition? I have been diagnosed with this and have been given very little information as to how to manage the symptoms. Are flare ups usual? Can symptoms be controlled with medications? My biggest complaint is pain and have been investigated for pelvic floor pain, urologic type pain and MSK pain all to no avail. I think it is the colitis that is the cause of my unrelenting pain. Your thoughts? Suggestions?

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lpockat | @lpockat | Oct 30 1:49pm
In reply to @ferguson23 "Hello and thank you for the message. Not sure if I was the correct recipient, as..." + (show)
Profile picture for ferguson23 @ferguson23

Hello and thank you for the message. Not sure if I was the correct recipient, as your greeting said [mailto:Hi@jlmp] . I have not been in touch for quite some time and was surprised, although pleasantly so, to hear from you.
I recently had a colonoscopy with removal of a benign polyp . As my microscopic colitis is now at the point of needing a biologic to control symptoms, not sure if this is the right choice for me given my history of lymphoma. I have an appt. at the end of this month to discuss with my G.I. specialist.
Thank you for your continued interest in my health .
Best for now, Jackie

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@ferguson23 Wishing you well in your journey. I am on budesonide, usually just 2 a day. I'm just starting it again after having surgery on my diverticulitis. In the past it has really controlled my bathroom issues. I hope they fine what will help you the best.

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maryfoley | @maryfoley | Oct 30 2:19pm

I take cholesterymine powder mixed with orange juice every other day and it helps a lot!!

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rebe410 | @rebe410 | Oct 30 3:07pm

FYI
I take two at a time with no issues.
Sure hope it helps you!

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hoops17 | @hoops17 | Nov 9 2:53pm

I'm hearing conflicting things on how to handle the diagnosis of lymphocytic colitis. my doctor says I should eat whatever I want to eat, but there are things that trigger episodes I'm finding. would love any thoughts about diet and lymphocytic colitis.

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Lisa Lucier, Moderator | @lisalucier | Nov 10 10:33am
In reply to @hoops17 "I'm hearing conflicting things on how to handle the diagnosis of lymphocytic colitis. my doctor says..." + (show)
Profile picture for hoops17 @hoops17

I'm hearing conflicting things on how to handle the diagnosis of lymphocytic colitis. my doctor says I should eat whatever I want to eat, but there are things that trigger episodes I'm finding. would love any thoughts about diet and lymphocytic colitis.

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@hoops17 - I moved your post here to this existing discussion on lymphocytic colitis so members here could weigh in on your question about whether diet has an impact on this condition.

What things are you finding trigger episodes for you?

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hoops17 | @hoops17 | Nov 10 11:31am

Pastrami and french fries are about the only things I've tried that were definitely triggering.
thanks for moving me to the right place!

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lpockat | @lpockat | Nov 10 5:14pm

I am always looking for triggers. The last thing that triggered it were a few marachino cherries with a couple spoons of the juice on vanilla ice cream!! Over all I have eaten most things- smaller amounts- but I always avoid spicy, and greasy stuff. If I get a craving - again small amounts.

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hoops17 | @hoops17 | Nov 10 8:19pm
In reply to @lpockat "I am always looking for triggers. The last thing that triggered it were a few marachino..." + (show)
Profile picture for lpockat @lpockat

I am always looking for triggers. The last thing that triggered it were a few marachino cherries with a couple spoons of the juice on vanilla ice cream!! Over all I have eaten most things- smaller amounts- but I always avoid spicy, and greasy stuff. If I get a craving - again small amounts.

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@lpockat thanks for sharing, I'm cautiously looking for things to add to my small list of things that don't seem to be a problem. I wish they could take a blood sample and run it through all different foods I eat. One day perhaps...my latest addition of things that seem to be okay is olive tapenade, which I love.

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