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Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: 15 hours ago | Replies (76)

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I asked my pulmonologist at NJH about Brinsupri. He wasn't ready to prescribe it for me since I have not had any infections for over a year. He said he would if I got sick. I'm keeping my fingers crossed. The scary thing for me is that I do not show any immune response to the pneumonia vaccine. My doc here wanted to start infusions twice a month. NJH said not to do it. So I'm not doing them. They can have bad side effects. I think this was off subject, but I wanted to mention Brinsupri. I'm glad it's working for others.

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Replies to "I asked my pulmonologist at NJH about Brinsupri. He wasn't ready to prescribe it for me..."

@rozie83
It sounds like you had that test they do with the pneumonia vaccine. It is probably the only test I have not done and was planning to ask for it when I got the pneumonia vaccine. But if the solution to a non response is infusions (IGG?) and NJH said not to do it then not sure what the point would be. Do you know why they said not to? I have heard the side effects can be bad from my pulmo. Is there anything else you can do that is safe? Take colostrum supplements?