Afraid it the treatment meds for osteoporosis

Posted by mahonlye @mahonlye, Oct 23 12:13pm

I’m 68 with latest spine score of-37. My body type is very thin with BMI 19- but I eat extremely healthy diet and do excellent exercise every day - no falls. I have no other health issues so dont need to take medications. I’m totally petrified to take any of the medications I’ve been told I need for treatment of osteoporosis. I don’t know what to do! I know breaking bones will be awful but I’m so weary of these poisons they want to put in my body.

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Profile picture for nycmusic @nycmusic

@mamabear77 maybe, a different doctor…many give orders without listening, not a healing scenario…many are okay with patients getting quite sick, as if that’s the only alternative to fractures ! Hello !?!

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@nycmusic Well said.

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Profile picture for dtevis @dtevis

It is very difficult to weigh options. The FDA recently approved a vibration belt that is worn around hips however it was studied only for osteopenia. Cost is near $1,000. It is hard to weigh whether to consider if one have osteoporosis & somehow I have my doubts about insurance covering it.
Wearing a vibration belt, like the FDA-cleared Osteoboost, can be a non-pharmacological option to help treat low bone density (osteopenia) by stimulating bone in the hips and spine. It is a prescription-only, wearable device recommended for postmenopausal women with osteopenia to help reduce the decline in bone strength and density. While it may help with osteopenia, it has not been tested for its ability to reduce fracture risk, and you must discuss it with your doctor before use.

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@dtevis I looked this up last night, and did a little research. The clinical trials really did look promising. Important to note that calcium supplements, diet, exercise, and in some cases, a bone-building drug to accompany the vibration belt appeared to provide optimal results.

I’d think the fact that it is FDA approved would allow for some insurance coverage, but we are in an upside down world on that front. It’s a shame it’s so expensive.

How fabulous would it be for people to have a drug-free way to maintain bone! Seems to me, insurance covering just a portion of it is actually cheaper for them. They don’t have to pay for the drug, and all the necessary bloodwork that comes with it, not to mention additional therapies for side effects.

Thanks for that info, it was great to know!

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Profile picture for karenjaninaz @karenjaninaz

@kathleen1314 I took strontium and it seemed to change me from osteoporosis to osteopenia. Then I developed atrial fibrillation and was afraid to keep taking it because strontium displaces calcium in the bone. Calcium is involved in heart health. Once my Afib was ablated I resumed strontium. Then I got palpitations- and a kidney stone . So stopped.
There is more natural strontium in organic foods so I am
going that route. Commercial fertilizers, it seems, lack this natural mineral. I am 83 on long term steroids.
Retired nurse anesthetist.

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@karenjaninaz
You are the best judge of what works for you and only you may decide that.
Research is a different matter though.
You are mistaken when you say that strontium displaces calcium in the bone. It is more accurate to say that strontium has the capacity to bridge the large osteoporic gaps in the bone and then calcium adheres and then bone grows.
You seem to imply that strontium has a part in cardio events.
Strontium Citrate has never been tied in any study to cardio events.
Strontium is found in much of the world's ground water and in some areas of the world is found in high concentrations. If strontium was a cause of any heart conditions then those areas would have shown a definite change in cardio events. In the history of the world, no such population study or research has ever shown a problem in those areas with high strontium content in their ground water.
You may be alluding to that one population study, which has never been able to be reproduced, which showed a rise of cardio events in the population of those on strontium ranelate, people who also had existing cardio problems. Other population studies which eliminated existing heart patients found no tie of even SR to cardio events. Denmark studied the SR for a year and found no tie to cardio events.
Still, it is always best to be safe:
Evenity, prolia and Forteo all have ties to some type of cardio event. In addition, calcium supplementation has also been associated with cardio events.
Strontium citrate has never been associated with any cardio events.

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Profile picture for karenjaninaz @karenjaninaz

@kathleen1314 I took strontium and it seemed to change me from osteoporosis to osteopenia. Then I developed atrial fibrillation and was afraid to keep taking it because strontium displaces calcium in the bone. Calcium is involved in heart health. Once my Afib was ablated I resumed strontium. Then I got palpitations- and a kidney stone . So stopped.
There is more natural strontium in organic foods so I am
going that route. Commercial fertilizers, it seems, lack this natural mineral. I am 83 on long term steroids.
Retired nurse anesthetist.

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@karenjaninaz that’s a lot of medicines !….and of concern to me as time goes on and new health issues come up, so I am personally researching the simplest ways to take care of my present needs to avoid negative drug/supplement interactions, especially as time goes on. What often happens is people end up taking meds to deal with med side-effects, very common with cancer drugs !

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Profile picture for mahonlye @mahonlye

Thank you for your response…. Agree with all.
Oh yes, I’ve been on D3 for years and my levels are checked routinely. I am always thinking and aware of my movements to stay as safe as possible while lifting, walking, etc.. I do 5 days a week of exercise classes that include balance, resistance weight and core building strength - I’m trying desperately to avoid a fracture, but am also aware that my T score number puts me at high risk for fracture regardless.
For me personally, the struggle is simply accepting these medications that change my body on a cellular level, it’s so unnatural to make a 68 yr old grow bone. I’m afraid and I struggle knowing it might help my osteoporosis, but what does it destroy, change or do otherwise? My Drs remind me the risk stats are “low” but does anyone else worry that medications are sometimes pushed for financial purposes or that information comes out at a later date that disproves what the medical professionals supported prior- ie; if HRT is bad or good, if statins are needed etc…. These thoughts are what causes me to delay the treatment.

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@mahonlye
OP is a complicated disease, compounded by the medications that work better for some than others, and with some terrible side effects. I was recently diagnosed at 69 years with spinal Deg Disc Disease and as result I have scoliosis in my lower spine. PT helped a lot with specific exercises, I also bike and swim as often as I can. Never took HRT, and was menopausal at 52. Dexascan with good numbers and have never suffered a fracture. I realize I need to take care of my spine if I want to have a good quality to my remaining years. Recently OB put me on Estrogen cream which has helped my bladder ( uti type symptoms) and vaginal dryness. I also find that my back pain from scoliosis is better on the days I use the estrogen. OB does not consider the Estrogen a long term treatment, and I cannot use every week due to side effects. I also recently started a statin Atorvastain Liquid as my stomach could not tolerate most other statin pills. My research revealed that statins can help with BMD in low doses. There are alot of studies linking this effect, but has not been proven. What I have found is when I take the statin my back pain decreases. Statins are also known to be anti inflammatory, and I am hopeful that I won’t progress to OP, that my BMD will stabilize, only time will tell. You are your own best friend when it comes to medications, recommend do research and listen to your doctors and ask questions.

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Profile picture for sharonba @sharonba

@mahonlye
OP is a complicated disease, compounded by the medications that work better for some than others, and with some terrible side effects. I was recently diagnosed at 69 years with spinal Deg Disc Disease and as result I have scoliosis in my lower spine. PT helped a lot with specific exercises, I also bike and swim as often as I can. Never took HRT, and was menopausal at 52. Dexascan with good numbers and have never suffered a fracture. I realize I need to take care of my spine if I want to have a good quality to my remaining years. Recently OB put me on Estrogen cream which has helped my bladder ( uti type symptoms) and vaginal dryness. I also find that my back pain from scoliosis is better on the days I use the estrogen. OB does not consider the Estrogen a long term treatment, and I cannot use every week due to side effects. I also recently started a statin Atorvastain Liquid as my stomach could not tolerate most other statin pills. My research revealed that statins can help with BMD in low doses. There are alot of studies linking this effect, but has not been proven. What I have found is when I take the statin my back pain decreases. Statins are also known to be anti inflammatory, and I am hopeful that I won’t progress to OP, that my BMD will stabilize, only time will tell. You are your own best friend when it comes to medications, recommend do research and listen to your doctors and ask questions.

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Very interesting - thank you for this input. Good luck to all of us !

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I’m 79 and was diagnosed decades ago AFTER taking Fosamax and later Actonel, neither of which helped in the slightest. In fact as the years rolled by, my DEXAs showed additional regression. I was doing my own research when I happened upon this: Anti-depressants leach vitamin D from the bones and I’d been on Zoloft for approximately the same timeframe. Apparently the docs didn’t know?
I’ve stayed with Zoloft/sertaline, and am taking calcium(600mg) + D3(400IU) twice a day, AND an additional 5,000IU of D3 daily. Total D each day? 5,800IU. Surprise! My DEXA improves slightly every time… maybe not for everyone but I couldn’t be more pleased!!

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Profile picture for sharonba @sharonba

@mahonlye
OP is a complicated disease, compounded by the medications that work better for some than others, and with some terrible side effects. I was recently diagnosed at 69 years with spinal Deg Disc Disease and as result I have scoliosis in my lower spine. PT helped a lot with specific exercises, I also bike and swim as often as I can. Never took HRT, and was menopausal at 52. Dexascan with good numbers and have never suffered a fracture. I realize I need to take care of my spine if I want to have a good quality to my remaining years. Recently OB put me on Estrogen cream which has helped my bladder ( uti type symptoms) and vaginal dryness. I also find that my back pain from scoliosis is better on the days I use the estrogen. OB does not consider the Estrogen a long term treatment, and I cannot use every week due to side effects. I also recently started a statin Atorvastain Liquid as my stomach could not tolerate most other statin pills. My research revealed that statins can help with BMD in low doses. There are alot of studies linking this effect, but has not been proven. What I have found is when I take the statin my back pain decreases. Statins are also known to be anti inflammatory, and I am hopeful that I won’t progress to OP, that my BMD will stabilize, only time will tell. You are your own best friend when it comes to medications, recommend do research and listen to your doctors and ask questions.

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@sharonba very interesting about statins, BMD and back pain…will research to discover the connections there…i have also heard that statins can make more muscle pain….in the end,it’s my great medical team that guide me. You are right, each of us knows our own body and how meds affect us.

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Profile picture for mcchesney @kathleen1314

@vga
I assume that you mean strontium citrate dosing. The only information which I can give you is what the research says. As per the research, 680 mg daily of strontium has a positive impact on osteoporosis. As per the research, 480 mg daily of strontium seemed to work on osteopenia.
Mots and comb research for strontium citrate, comparison on BoneLadies' blog:
https://strontiumforbones.blogspot.com/2020/
A compilation of research and posts about strontium on Inspire:
https://www.inspire.com/groups/bone-health-and-osteoporosis/discussion/dd823b-strontium-a-compilation-of-research-and-information/
What any of us decide to take for our osteoporosis is a complicated decision made up frequently of as much how we feel as what the research says. We need to feel safe and comfortable in our decisions in our own thoughts and taking into consideration our doctor's input because they frequently have a good handle on our medical history and what is causing our osteoporosis. So be sure and talk with a good endocrinologist and have all the appropriate tests. My endocrinologist told me that I did not need him any more and to change nothing.
One thing to bear in mind is that you may start and stop strontium citrate easily; that is not the case with some osteoporosis drugs.

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@kathleen1314 so which strontium do you recommend and by which company?

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