Should I have the Spinal Cord Stimulator? Looking for reviews on this

Posted by denman55 @denman55, Jun 5, 2023

I have had chronic lower back pain due to lumbar spinal stenosis for over 10-years. I have had multiple therapies and procedures done - including RFA, Epidural steroid injections, a MILD procedure, acupuncture, OT/PT and Chiropractics, as well as an Interspinous spacer and nothing has helped my pain. After all of that, the physician I saw in March's only recommendation was for me to have the Spinal cord stimulator, but I am actually afraid of this and have read that there have been numerous injuries as a result of this implant, and after reviewing the booklet and watching the video I initially felt that it was just to restrictive in terms of how you could move your body. If you have had this procedure please let me know your results. Many thanks.

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I did have a lumbar spinal fusion ten years ago and have never been the same. My pain specialist tried 10 minimally evasive surgeries and none of them took the pain away. The last one was a spinal stimulator from Boston Logistics which did not help. That's not saying that it won't work for you. I talked to two people who had it and it helped them allot.

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Spinal cord stimulators have lots of risks and few people benefit from them, and then not much. Please see this article about the issues and other alternatives; https://www.paintreatmentdirectory.com/posts/spinal-cord-stimulators-high-risk-low-benefit

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Thanks for your response. The device is the newest in the SCS line. I’ve done some research, I’m looking for a conversation with hopefully an AS patient or a Dr who has treated such patients to compare notes with.

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Profile picture for denman55 @denman55

Oral pain meds and/or Narcotic pain medications are not available in NJ. A pain pump is normally only for cancer patients with intractable pain, especially if Morphine or another narcotic is used. The only option for pain relief presented to me was the Spinal Cord Stimulator for my lumbar spinal stenosis pain that has not responded to alternative treatments and therapies.

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I came across your post today and wondering if you got the SCS appliance and how it is working out for you? My wife has chronic back generated pain post fusion that is running down her leg. Very debilitating and started a Medtronic SCS trial yesterday.

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Profile picture for heisenberg34 @heisenberg34

No, the procedure IS done in the doctors office, unless your particular doc prefers a surgery center. The procedure is minimally invasive (the trial) and takes very little time. Done under fluoroscopy. Look, every procedure has its pros and cons. You have to ask yourself, "Am I content to continue my life in pain, or, am I willing to do a trial of a device that could, potentially, change all that?". Are you on any meds. When I first got my back pain meds a year after my ski fall, I finally saw a neurologist who prescribed gabapentin, diazepam, and tramadol for my pain. I was unable to ride my bike up to that point. After letting my body adjust to the effects of the drugs, about a week, I was able to get back and start cycling again. Was up to 30 miles once or twice a week. Just food for thought.

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@heisenberg34 : it may be customary for SOME Pain Mgmt Drs,,,, but seems to me, anything involving the Spine/nerves, should be implanted in as clean environment as possible !

Now, any experiences here assessing devices by Medtronic, Nevro and Saluda-EVOKE SCS devices ?

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It helps some. My nephew got it and got a bad infection. I met another man who has it and he swears by it.

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Profile picture for Gregda @gregda

@heisenberg34 : it may be customary for SOME Pain Mgmt Drs,,,, but seems to me, anything involving the Spine/nerves, should be implanted in as clean environment as possible !

Now, any experiences here assessing devices by Medtronic, Nevro and Saluda-EVOKE SCS devices ?

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@gregda I guess that I should have mentioned that the doctors who did my trials did so in a very clean environment. Separate from the regular exam rooms.

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Profile picture for heisenberg34 @heisenberg34

@gregda I guess that I should have mentioned that the doctors who did my trials did so in a very clean environment. Separate from the regular exam rooms.

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@heisenberg34 : glad it worked for you! Just seems to me anything dealing with minor surgery that places leads along the spinal column, needs to be extremely clean. I’ll give it more consideration, but think I’d prefer to be more in a hospital operating room.

And still need info on are there device devices that can affect the motor nerves as well as the sensory nerves?

Continue to heal well, thanks!!

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Profile picture for ga29 @ga29

Thank you for sharing your experiences. I am currently weighing my options as well for pain relief in my spine, including another fusion surgery, which may or may not reduce my pain!
I am taking oral pain meds, have for many years, but its effectiveness is is not as good as it was.
I’m considering getting a pain pump, my current doctor says they are not recommending those anymore. Not sure that’s true?
Also considering the SCS, but like denman55 I’m afraid of the possible damage it may cause to my back. Any thoughts are appreciated!

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@ga29 Back at ya some time later. I discovered that in many cases(like mine) that you have to keep ramping up the medication from the pain pump. It can take a significant amount to reduce your pain. This can take quite a while especially if they start at a low dose and up the dose at only ten percent intervals. Ask Google how many increases it would take to go from your starting dose to a therapeutic dose. Say, starting at 0.02 mg to 2.5 mg daily. It can be quite a few. Any way, I hope you are doing well.

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Profile picture for Gregda @gregda

@heisenberg34 : it may be customary for SOME Pain Mgmt Drs,,,, but seems to me, anything involving the Spine/nerves, should be implanted in as clean environment as possible !

Now, any experiences here assessing devices by Medtronic, Nevro and Saluda-EVOKE SCS devices ?

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@gregda My pain specialist has a surgery center in his building. They were extremely careful with implantation and cleanliness and I was sedated for the procedure. No problems. I can't imagine not having sedation and at least a clean procedure room.

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