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Boy do I hear you!! I have Rheumatoid Arthritis also and Sjogrens and Lupus. But. I’m thinking with you that being anemic alone will make you exhausted!! Did that doctor give you iron?? With RA for me it has been a new day every day. I was diagnosed many years ago and have been on many of the new drugs to treat it. Thank God that we have them. But there are side effects as we all know. Right now I’m on RINVOQ and it’s really working well better than any drug that I have taken. Sometimes it takes time in the beginning to get your meds right. I’m so so sorry that you’re struggling so hard. It is a life altering illness for sure. There is no way that I could work in flower beds with RA the aftermath is not worth it. It requires a lot of rest for me and avoiding all the stress that I can. Hard I know. I haven’t heard of the place that you are going. Don’t forget about Mayo Clinic. Please keep us posted we really do care and you can write to me anytime and as much as you want. Diane.

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Replies to "Boy do I hear you!! I have Rheumatoid Arthritis also and Sjogrens and Lupus. But. I’m..."

@adlttl123
Hi Diane, Thank you for your response. I have a rheumatologist here in Prescott and one at Mayo Clinic. Both are baffled as to what is going on. RA/PMR or not? I am not symmetrical as they think I should be. I will see my surgeon on Thursday and pray to God this reverse shoulder replacement will 'hold' and the inflammation will not cause further destruction to my bones. I am in touch with GSK, maker of Shingrix which triggered all this. My friend is on RINVOQ but my doctors will not prescribe it for me, as it has black box warnings. Now, Kevjara (which I took earlier this year and it tanked my cell counts), seems to have warnings as well. Always something!