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Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 20 hours ago | Replies (429)

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@dpaula

why would you have to sign papers????

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Replies to "@dpaula why would you have to sign papers????"

@regen99 probably a poor choice of words on my part. My general pulmonologist (I am not currently being seen in a Bronchiectasis Center) initially just called the prescription into my regular pharmacy Kroger and of course we all know now that is not the route for us to get on this medication. He then must have reached out to Insmed to find out how to get me Brinsupri. They then sent him, a "Patient Support Program Enrollment Form". That is the "papers" I was referring to I had to sign via email. My prescription was sent to Amber Pharmacy one of the specialty pharmacies that happens to be located in Nebraska. My insurance company, Medicare Part D Blue Cross Blue Shield Prescription Blue PDP, initially rejected the medication for me. My pulmonologist appealed and I was accepted though I had to meet the remaining Medicare Out of Pocket expenses for the year which was about $950 for me. I did not request help with the $950 because I do not believe our income will qualify for help. I might explore this come January when my cost will be the full out of pocket Medicare has set for 2026. I have been on the medication Brinsupri 25 mgs. for 10 days. I will say this, my pulmonologist initially called in 10mgs to Kroger and since I learned that 25mgs might be better for my situation I was able to get that changed by the time the prescription got to Amber pharmacy. So I am grateful for that little time lag I had there to remedy the dosage.

As for how I am doing on ten days, so far no side effects though it is way early and my sputum volume is still up there at about 100 cc per day but lighter color and less thick by a lot. My last CT Scan was just days before I stared to medication and despite everything I am doing right it was worse with more mucoid impaction. So I am hoping beyond hope that this medication will help me move the junk out and eventually cut down the sputum.

@irenea8 tagging you as a followup so that you can see my prescription plan did accept the Brinsupri.