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Weighing the cancer risk reduction & quality-of-life cost of ADT?
Prostate Cancer | Last Active: Feb 13 5:00pm | Replies (123)Comment receiving replies
I'm 74. Christmas Eve will be one year on Orgovyx (daily ADT tablet) and I had nine weeks of weekday radiation last spring. Gleason 7, N1M0 (prostate plus two adjacent lymph nodes). No surgery. My oncologists are very young and more focused on cure than quality of life. I have a follow-up with the medical oncologist in the coming week and a second opinion appointment with another medical oncologist in December. From what I have read, testosterone recovery for those of us in our 70s is a coin toss. I miss sex (painful reaction to Trimix injections) but am not ready to give up to accept a surgical implant, and the other side effects of hot flashes, fatigue, loss of body hair, and muscle loss are worth considering. I've been prescribed another year of Orgovyx but will pressing the doctors hard to shorten the time or "take a holiday" until PSA (undetectable since May) rises enough to warrant action. Orgovyx also throws off blood levels and I'm not interested in trading prostate cancer cure for diabetes or stroke. I'm just looking for < 10 years of reasonable quality of life without mortality from this disease.
Replies to "I'm 74. Christmas Eve will be one year on Orgovyx (daily ADT tablet) and I had..."
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@jime51
Having a painful result from Trimix is not uncommon. It is usually caused by one of the three drugs in the mix. Taking the other Two drugs can resolve the problem completely and still allow you to get an erection. Speak to your doctor about this.
You can Search the forum for trimix issues, somebody posted about the same issue a few months ago and found the drug that was causing them the pain and removed it.
I was on Lupron for six years and Orgovyx for one year When my oncologist and I figured I could stop taking ADT since my Testosterone was very unlikely to come back. I was 77 And took off from ADT for eight months. My testosterone rose every month, My oncologist told me I needed to go back on ADT. I’ve never really had any major problems with it. I don’t get fatigue. I exercise a lot. I do have to take bone strengtheners because I’m castrate resistant. My testosterone has been less than five for over 8 years Other than the eight months, I stopped ADT.
Orgovyx Has reduced my red blood cell counts and hemoglobin, but not low enough to Have anemia. I have plenty of energy. I run around the track twice a day, a full mile without stopping, It doesn’t tire me and I don’t get winded. I even do this after going to the gym.. I go to the gym three days a week and exercise with weights. I do take blood thinners because I have a history of Afib. Exercise with ADT gives you a lot more energy than if you don’t do it.
Yes, I have no body hair other than pubic hair and the hair on my head, No big deal.
Nobody, I know or meet would guess I have prostate cancer unless I tell them.
I found a lot of ways around hot flashes, Orgovyx Has helped a lot, Especially since I started taking Orgovyx in the evening rather than in the morning, when I take Prilosec.