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Negative Turn in a Long Journey

Pancreatic Cancer | Last Active: Mar 26 2:09pm | Replies (107)

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Hi Everyone...time for a quick update...

Overall, things with my QTX-3034 trial are going very well. This past Wed. started my 7th two-week cycle. The "numbers" show a 50% reduction in the size of the small tumor I have in my abdominal wall and other areas noted as suspicious/metastases in my original May scan (a lymph node and an adrenal gland) have also seemed to disappear. I had my annual check-in with my Whipple surgeon this week and he thinks the other "hazy attenuation" seen on scans in and around the surgical site is still just the way I healed post-surgery so that's also good. I am looking into whether or not having the abdomen growth removed at this point is possible but they may need to leave it for trial purposes so they have active disease to measure. My logic is even though it is shrinking, it is known to be malignant so there's no upside to having it hang around.

The negatives--low appetite, digestive issues, fatigue--haven't really improved, unfortunately. I had an infusion of magnesium and iron last week to address my anemia and deficiencies and hopefully that will help with the fatigue. I am now down about 12 pounds (I'm 6'0" and down to 140 lbs.) from a year ago, which is quite alarming to me but at least I've been holding at that level for the past month.

At any rate, I'm happy with the way things are going and continue to deal with the negatives as best I can.

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Replies to "Hi Everyone...time for a quick update... Overall, things with my QTX-3034 trial are going very well...."

@wpprescott
I hope you are doing better now, and the trial was positive.
Re your weight loss, I urge you to contact PanCan. Great org. They can help connect you to
PC-familiar dieticians, important info on pancreatic enzymes, relevant clinical trials, etc—for free