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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @lacazadora, I am glad you have found Connect as well. You mention ruling out Barrett’s and that sounds like a win! You also said testing has confirmed having a hiatal hernia, and this diagnosis is explaining so many things. This has to provide some long awaited comfort for you. I hope you can sit with this feeling a bit.

I have had conflicting guidance from providers. One cardiologist told me, “ask two cardiologists the same question and you will always get two different answers”. I suppose that makes sense considering the practice of medicine is not an exact science. My previous doctors were each attentive and took charge of my care…until I had problems and then sent me in circles. I felt like a hot potato. If I understand you correctly, hearing nothing is wrong is way worse than if you would have just heard, “I don’t know”. I have had times I took what I was told and moved on accordingly, only to find out that original information got me way off track.

I am interested to hear what you learn so I hope you will come back and comment. Have you had a chance to discuss your endoscopy findings with the doctor who ordered it? What is next?

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Replies to "Hi @lacazadora, I am glad you have found Connect as well. You mention ruling out Barrett’s..."

@jlharsh thank you for your kind response Janell.
I am considering finding a G.I. doc who works specifically with esophageal issues… But not sure. Still waiting to hear about the biopsies. The original completion of the test did say they took them out and some of them were pre-cancerous and some not.
Most frustrating right now just feels like I have to figure out how to live with this hernia… Which means big changes that are really hard for me to make. And I feel like I’m alone in it so I’m looking for a good nutritionist who understands some of my Issues that make it difficult. One tiny step at a time! Right now I’m just trying to get out of my anger n my depression so I can move forward.
Thanks so much for sharing with me and listening! It means a lot!