Stem cell treatment for small fiber neuropathy

@jwr, I also have idiopathic small fiber peripheral neuropathy but don't have any pain just numbness and tingling in the feet and legs. I do think there is a future hope that stem cell treatment can help others with neuropathy but I don't think I'll be around when it's readily available and has been proven to repair nerves for everyone with neuropathy. This is an article from 2018 but I'm pretty sure it still is the case when it comes to stem cell treatment.
-- Stem Cell Treatments: A real hope or false promise?
https://www.foundationforpn.org/stem-cell-treatments-a-real-hope-or-false-promise/
There are a few older discussions along with some recent comments from members discussing stem cell therapy. It might be helpful to scan through them - https://connect.mayoclinic.org/search/

My concern would be safety practices at the clinics. Here's some regulatory information for Mexico...

"REGULATORY AND LEGAL FRAMEWORKS IN MEXICO
The medical tourism industry is an important business in Mexico, which has been a popular destination for foreign patients who are seeking stem cell treatments, said María de Jesús Medina Arellano, an attorney from Universidad Autonoma de Nayarit who has studied health law and human rights in Mexico. The main consumers of services have been Americans and Canadians who travel to Mexico to obtain treatments that are either unavailable in or are less expensive than in their home countries.

Many private companies in Mexico offer stem cell treatments. However, with just three exceptions, none of the treatments offered in Mexico have been evaluated in Federal Commission for the Protection Against Sanitary Risk (in Spanish, Comisión Federal para la Protección contra Riesgos Sanitarios, or COFEPRIS) registered clinical trials. Yet, many of these treatments are offered as proven and effective therapies. COFEPRIS is an independent government authority of the Ministry of Health that has the exclusive statutory authority to oversee the inspection, approval, and authorization of activities concerning the use, storage, and transplantation of umbilical cord blood or derived human stem cells. However, COFEPRIS does not have standards or guidelines to implement and enforce when evaluating, authorizing, and monitoring research and therapeutic activities involving human tissues and cells, Arellano said..."
-- Stem Cell Therapies: Opportunities for Ensuring the Quality and Safety of Clinical Offerings: Summary of a Joint Workshop. - Comparative Regulatory and Legal Frameworks:
https://www.ncbi.nlm.nih.gov/books/NBK223198/

Has anyone in the group tried stem cell therapy for peripheral neuropathy?
After I had knee replacement I developed neuropathy in my feet and from my knees down to both feet and both legs.
I know stem cell therapy may be a solution.
ANYONE???
Frances Casale

I have researched them and found TruStem in the U.S.. I would not recommend leaving the U.S. for treatment as they are not regulated by the strict medical standards in the U.S. I have scheduled mine after the holidays. Good luck and God bless you.

What part of the body is your neuropathy?
Where is TruStem located?
Please let me know how it goes after treatment!

@cyndigarrison
Hi,
I have contacted TruStem and am truly considering treatment there!
However I would like to know how you make out after you go?
Can u tell a little more about your neuropathy?
Please?

I had stem cell treatment for my small fiber neuropathy and it didn’t work. Don’t waste your money!

@debbiehirsch
Oh I was getting my hopes up because I feel it is getting worse
Did you go to TruStem cell????

@debbiehirsch WOuld be interested to hear more about what you did, who provided it, what was promised, etc. Thanks for sharing!

@sikocesca mine is the extremities. Motor and sensory. The neurologist told me that it is from my autoimmune diseases. The inflammatory chemicals that are produced have attacked my central nervous system
I also have small fiber neuropathy. I discussed it with the doctor at TruStem and Im to have 3 types-intranasal, I.V. and I.M. My own cells from the bone marrow. 3 day stay in Illinois and insurance doesn't cover it. Its $13,900 including everything but airfare there. I've had these for over 20 years now and have tried lots of things. I'm a M.D. and have done lots of research as well. Good luck to you. I'll post afterwards to let you know how it went.

Good luck to you!
Let me know how you do.
In my thought for success!
Fran