@mamabear77 Oh Mamabear, I could cry for you. I am so sorry. As someone who took Zofran to prevent vomiting from chemotherapy - CHEMOTHERAPY!! - I don’t have words. There are other options besides Tymlos that may be so much easier on your body.
The strength you have to continue those injections despite the horrible time you’ve had…I hope you know how strong you are. My goodness, I wish I could squeeze your hand. You are one tough cookie.
I, too, would consider a “less effective drug,” but it might turn out to be just as effective over a longer period of time. That’s a good question to ask too.
I’m having a similar issue with my rheumatologist in that he is insisting on Tymlos, but I must share what my new cardiologist said to me that brought tears to my eyes. (I am seeing a cardiologist to give me a full work-up before starting Tymlos precisely because of the heart palpitation side effects.)
He said, “there are many doctors who will push drugs at you for reasons that I know you understand, but I will tell you that the doctors here (in his group) will never do that. I will never do that. So if you feel pushed on a drug, ask them why.”
So while I can’t suggest you find another doctor (specialists in my area are very hard to find, and aren’t booking until spring 2026), what I WILL say - and I say this to all - is that if we feel a doctor is pushing or so insistent on a particular drug that it makes us physically and emotionally uncomfortable, we have to challenge that, perhaps by saying…
“Why are you so insistent on this one drug when I know for a fact there are so many options out there that allow me quality of life without debilitating headaches, heart palpitations, and consistent nighttime vomiting?”
I will do the same.
Mamabear. Big hugs to YOU today. And thank you for sharing. 💜
@beachesanddreams Thanks for your kind response. I guess my biggest annoyance has been my doctor's apparent disinterest in helping out with side effects of the Tymlos...to the point that she would simply switch me to something that she'd spent an hour explaining would not help me enough. (Spine score of-3.6) I am 77 yrs. old, so that made sense to me...not interested in a drug that would merely slow down my bone loss, rather than actively build bone. And this change would have been made with no further discussion, apparently. She knows I am a retired nurse, capable of understanding a choice like this. This condition is long term, and I expect to be able to communicate with my doctor. The side effects may well lessen...some have..but I really would almost rather have the fracture concern than be semi-sick for two years. Have an appointment with a new endo in January..that much I can do. Also thinking about a few days off the drug to see how I feel. Feel like I am trying to sort this out by myself. I have restless leg syndrome, too, so I am used to that.