← Return to Been to an Epilepsy Monitoring Unit? What’s it like?

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Profile picture for tbrookhouser @tbrookhouser

@santosha thank you for sharing your story and am so happy that you have received answers. Two days after the stroke- I was discharged from the hospital and had 2 convulsive seizures with face drooping and impaired speech while staying in my mom’s room (she had been admitted to the heart floor) Rapid response was called and then I was released. 3 weeks after that I had a home 72 EEG which showed abnormal & was told I had seizures without any further testing. Back in November I had multiple MRI and CT- all normal with the exception of 1 dr saying I had lacunar strokes previously and all other dr.s disagreeing. January, I had one seizure from a red light in January and facial dropping on the right side. No episodes until May where I have had multiple tonic clonic and unfortunately my boss calls the EMT’s every single time. Cardiac arrest in June, Status Epilepticus in August, multiple hospital stays. Multiple CT’s, MRI’s , tilt table test, sleep deprived eegs, 20 min eegs, some show epileptic and non epileptic episodes. It has just been frustrating and I don’t feel that I have epilepsy. I am hoping we have answers and a definitive answer and if the seizures are actually brought on by the seizure meds. Thank you for jus letting me vent.

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Replies to "@santosha thank you for sharing your story and am so happy that you have received answers...."

@tbrookhouser
I'm really hoping you get your answers very soon! 🙌💜
Please keep me posted; I'd love to hear how things go!
Stay strong, and remember you're not alone in this journey.
Chris