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Chris Gautier, Volunteer Mentor avatar

Which Seizure Trigger Is Your Hardest Battle?

Epilepsy & Seizures | Last Active: Nov 25 8:39am | Replies (22)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@methel
Hi there!
Thank you so much for sharing your experience.
Cutting caffeine from your diet must have been quite a challenge—it's in so many things! I really related to what you said about "compulsively reading labels and quizzing waitstaff." I do the exact same thing because of my gluten intolerance, which can trigger my seizures. It's so exhausting sometimes, isn't it?
I wonder if decaf coffee might be an option? It still has tiny amounts of caffeine, but your doctor would know best if that would be okay for you.
Have a nice weekend!
Chris

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Replies to "@methel Hi there! Thank you so much for sharing your experience. Cutting caffeine from your diet..."

@santosha

I thought of that and tried decaffeinated coffee, just once, and had a seizure. Apparently the decaffeinating process eliminates much, but not all, of the caffeine. For most people and conditions, that’s good enough. But for some reason I am amazingly sensitive to the caffeine. And so…