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Afraid it the treatment meds for osteoporosis
Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (110)Comment receiving replies
@beachesanddreams I would take it a bit further. Not only OTC meds, but prescription meds for side effects. I have had problems with almost every body system at on time or another during my one month on Tymlos: significant worsening of memory, anxiety, worsening of muscle and joint pain, fatigue, balance, headache, . constipation, nausea, bloating. I am not saying that Tymlos absolutely caused these things. Some of them were present and just became worse. But regardless, the negative changes all occurred when I started the drug. Some have lessened or stopped. But when I was waking up several hours after the shot, nauseated and sometimes vomitting, I notified my doctor. I had to practically beg for something to take for that problem. She finally gave me 8 pills of a pediatric dose of Zofran, and said if I continued to have this problem, she would switch me to another drug (This after spending our entire first visit telling me that Tymlos would be the only one that would really help me) Willing to go to a less effective drug because of a common side effect. I don't get it. If side effects..many of them lessening over time..involve treatment, we scrap the whole plan?? Different doctor?
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@mamabear77 Oh Mamabear, I could cry for you. I am so sorry. As someone who took Zofran to prevent vomiting from chemotherapy - CHEMOTHERAPY!! - I don’t have words. There are other options besides Tymlos that may be so much easier on your body.
The strength you have to continue those injections despite the horrible time you’ve had…I hope you know how strong you are. My goodness, I wish I could squeeze your hand. You are one tough cookie.
I, too, would consider a “less effective drug,” but it might turn out to be just as effective over a longer period of time. That’s a good question to ask too.
I’m having a similar issue with my rheumatologist in that he is insisting on Tymlos, but I must share what my new cardiologist said to me that brought tears to my eyes. (I am seeing a cardiologist to give me a full work-up before starting Tymlos precisely because of the heart palpitation side effects.)
He said, “there are many doctors who will push drugs at you for reasons that I know you understand, but I will tell you that the doctors here (in his group) will never do that. I will never do that. So if you feel pushed on a drug, ask them why.”
So while I can’t suggest you find another doctor (specialists in my area are very hard to find, and aren’t booking until spring 2026), what I WILL say - and I say this to all - is that if we feel a doctor is pushing or so insistent on a particular drug that it makes us physically and emotionally uncomfortable, we have to challenge that, perhaps by saying…
“Why are you so insistent on this one drug when I know for a fact there are so many options out there that allow me quality of life without debilitating headaches, heart palpitations, and consistent nighttime vomiting?”
I will do the same.
Mamabear. Big hugs to YOU today. And thank you for sharing. 💜
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@mamabear77 maybe, a different doctor…many give orders without listening, not a healing scenario…many are okay with patients getting quite sick, as if that’s the only alternative to fractures ! Hello !?!