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Completed Tymlos, considering refusing Prolia
Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (12)Comment receiving replies
@beachesanddreams I had a problem with headaches when I first started Tymlos. Every day I'd wake up with a bad one that got better as the day went along. I stayed on full dose shots, the headaches gradually improved, took weeks. I have problems with muscle aches and stiffness and nighttime leg cramps. I can't say Tymlos is causing that, I'll have to be off it for awhile and see if I improve. I never had palpitations.
I'm leery of Prolia because of the possible side effects and the risks in stopping it. I'd like to see if I can maintain my present scores without any more injections of any kind.
I'm surprised your Dr started you on Prolia without bone building drugs first. I hope you have a good and safe outcome in the treatment you decide on!
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@vansks I tried to reply last night, but I think there’s a daily limit. My reply wouldn’t post. This is my second day here on Mayo Connect, so I’m learning. 🙃
My gynecologist was actually the one who started me on Prolia. I only had one injection and did very well on it. I was scared of the side effects, but I only had a wonky sensation in my elbow that lasted one day. That was it.
The reason I started seeing a rheumatologist was because my gyno SWORE Prolia was the only drug I could take for osteoporosis, and deep down I knew that wasn’t true. I didn’t care at all for how her nurse spoke to me about my treatment. I felt very unsettled.
Now here I am, reconsidering Prolia over Tymlos once more. We gotta ask the questions though, right?
I think my gyno - and my oncologist agrees - that because the osteoporosis is only in my lumbar spine (osteopenia everywhere else), that Prolia could help build bone alongside proper supplementation, exercise, and diet. Apparently, Prolia can help build new bone in some people.
I could try Tymlos at a low dose to start and titrate up, see how I do. I’m getting an opinion by a cardiologist as well, to cover all bases.
I did very well with Alendronate too. That also helps you maintain bone. I had no side effects at all. No fatigue, no headache, nothing. Has your doc talked about Alendronate/fosamax? You take it once a week, so if you experience side effects, you can stop taking it. Of course, I don’t know if that’s the right drug to help you keep all that fabulous new bone you’ve built for yourself, and you want to hang on to that for sure!