Hi @chloep145
Thank you for sharing this with me.
The sensations you're experiencing might be what are technically known as prodromes.
According to the Epilepsy Foundation:
"Some people may experience feelings, sensations, or changes in behavior hours or days before a seizure. These feelings are generally not part of the seizure, but may warn a person that a seizure may come. Not everyone has these signs, but if they do, the signs can help a person change their activity, make sure to take their medication, use a rescue treatment, and take steps to prevent injury."
https://www.epilepsy.com/what-is-epilepsy/understanding-seizures/what-happens-during-seizure
I've experienced prodromes myself during my epilepsy journey. They're strange sensations that are quite hard to describe. They can occur from a few minutes to 1-2 days before a seizure.
When I notice these sensations, I immediately stop what I'm doing and find a safe place to sit down. Then I put into practice some techniques I've learned through the Andrews-Reiter approach, a comprehensive cognitive-behavioral treatment program for epilepsy.
Have you been experiencing these sensations more frequently now that you're reducing your medication compared to before?
What do you typically do when these sensations appear?
Have a nice weekend!
Chris