Thanks for your advice all. We had met with the folks at Community Hospital in Indianapolis. They are in the MD Anderson affiliation. The surgeon had a great reputation but was old school and didnt do immediate reconstruction. The radiologist was awesome but Indiana doesn't do proton therapy. Closest is Cincinnati. He actually strongly recommended that we check it out. Said it was much better especially for the facial area where a lot of things are located. He sent the referral over. So Cincinnati Health has all our info now and we are working on getting all that approved. The oncologist, while he seemed knowledgeable, was a little underwhelming. He didn't really answer all our questions well. Just kept referring to what studies said. I asked if he was a think outside the box kind of person and he said he "stayed more in the box," That didn't do much for me.

However my oncologist recommended some people when I met with her at my annual checkup (Breast caner 14 years ago). She is through IU Hospital, a major teaching hospital.

We met with the surgeon yesterday, mainly for a second opinion. He recommended the same surgery, but he is trained in microvascular surgery and said because his tumor is fairly large he recommended immediate reconstruction with a flap graph. The community doc wasn't doing that.

So Monday's surgery has been cancelled. The new surgeon had one opening on November 25th, and Joe was willing to wait the 2.5 weeks. We are also meeting with a new oncologist. We mentioned that to the new surgeon who said we will love the new guy.

So....in 24 hours, we cancelled a surgery that was on Monday, changed surgeons, getting a different oncologist and waiting on the radiation finalization. It's been a day