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← Return to ADT, maybe not? Anyone opted out of ADT?
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ADT, maybe not? Anyone opted out of ADT?
Prostate Cancer | Last Active: 2 hours ago | Replies (83)Comment receiving replies
@jonesfit65 Has no doctor ever mentioned getting a PSMA PET scan done? That is far more accurate than a simple CT scan on determining where the cancer is. How about an MRI scan of the prostate to see how many lesions there are and what PIRADS score each one has? Beyond doing hormone treatment which has suppressed the cancer and driven the PSA down to 0.05, there should also be some discussion about using radiation to permanently kill as much cancer as possible. Be sure to bring all these issues up with the doctors at the Christus Cancer Ctr.
Replies to "@jonesfit65 Has no doctor ever mentioned getting a PSMA PET scan done? That is far more..."
@wwsmith, what treatments did you have? Did you have ADT? How are you doing now?
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@wwsmith Tell me about it!!! No, I had to ask even for subsequent CTs. He has a growing pancreatic cyst is the only reason an MRI was done & it showed unremarkable prostate & lymph nodes, of course like you said the Lupron & Zytiga was keeping the PCa in check!! I'm really not smart enough to ever become a doctor, but are they really that stupid?!
Because I talked my husband into it, we are demanding ADT is stopped effective Nov 10. Then we plan to do all the things you suggested & that I have been researching for about 3yrs. I still don't know what PIRADS or even decipher score is, but I've been following PCF for quite a while & they are having a Webinar next Thur. re: genomic testing, which I've wanted for quite awhile. Of course , we couldn't do until some of the cancer woke up. He had a Genetic blood test by Myriad per my request that turned up not genetic, but nothing but PSAs every 3mos for almost 4yrs. How come it seems like at least 14yrs?! Again, thanks for your input. I appreciate it!