Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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I had Tamoxifen 5 years, then 2 years Anastrozole, don't have obvious side effect, stoped on 2019, recurrent on 2022. I don't know it tells Anastrozole works or not?

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Profile picture for anniez1943 @anniez1943

@tullynut So glad you wrote about Anastrozole and your side effects. As for me, I can't GAIN weight. I eat like a truck drive and cannot get above 101. So I'm thinking that I am more than blessed. Have been taking it for 11 months. 83 years and zippy and full of energy. Thank you for sharing your positives about Anastrozole. Hugs and love.

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@anniez1943 I’m so glad that this is working out for you! My hats off to you at 83 as I’m 79 and find folks are amazed that I’m a fighter and stand up for myself! You sound like an independent woman so keep at it.
A quart of ice cream is what lifts me up on the rare occasion when I need a yummy boost. Hugs from afar!

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Although I know some people have side effects, so far I have not had anything major and I've been on anastrozole 10 months. A friend of mine just switched from another AI and she too is relieved that she doesn't have the aches anymore. I guess it just depends. Our systems are all different. I'm 79 and I'd like to live long enough to go to my grandchildren's weddings. And I'd like to spend some years not dealing with cancer. If lobular comes back, "it isn't pretty." That was how my radiation oncologist put it. So I'm taking these pills. Don't like my hair and my thumbs are feeling funny. Don't like the thinning of my brows, but hey, I"m alive and looking forward to Thanksgiving. Recently I went on ChatGPT to get info on recurrence, fed them my stats (stage of tumor, treatment, etc) and it was amazing. I could see the sources spinning as it gathered data from the top medical resources. Some of you might want to try that. The site's free unless you use it all day. (I don' t know if I"m allowed to make suggestions like that on here. If not, sorry) I'm still not sure that all oncologists understand that lobular is different from ductal. Ductal can recur in 2-5 years (and for most, it does not come back) but lobular (if it's going to come back) comes back later and often in a distant site. Gulp. Give me those pills!

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Profile picture for katrina123 @katrina123

We all have to make the AI decision if we have estrogen positive cancer. In my case I had terrible side effects, so I decided against taking them. Consequently, I got a different breast cancer in my other breast 4 years later, so I had to go through another lumpectomy and 4 more weeks of radiation. The decision to not take the AI's could be a deadly one for some. I think if I had not been an elderly woman I may have made a different decision regarding taking the AI's.

It has been almost 2 years since my second breast cancer and I am still here, but I continue to be concerned.

My next MRI is in December. We will see how that goes.

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@katrina123 I had a lumpectomy in 2016 and went on Tamaxifen. Like you, I got another cancer in the other breast anyway - 4 years later. I have been on Anastrozole for the last year or so and concerned it may not protect me.
I do understand it is not 100% protective, so I just have to hope for the best. I hope you will be ok also. It is urgent to catch these early.

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Profile picture for @mimi09 @mimi09

@anniez1943 I’m so glad that this is working out for you! My hats off to you at 83 as I’m 79 and find folks are amazed that I’m a fighter and stand up for myself! You sound like an independent woman so keep at it.
A quart of ice cream is what lifts me up on the rare occasion when I need a yummy boost. Hugs from afar!

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@mimi09
Hooray for you!!! No one knows us better than us. Especially at our age . I say "no" more than I've said it for most of my life. Now it's my favorite word. LOL. We're Oldies but Goodies. You go girl!!! Hugs back at ya!!!!!

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Profile picture for marshgirl24 @marshgirl24

Although I know some people have side effects, so far I have not had anything major and I've been on anastrozole 10 months. A friend of mine just switched from another AI and she too is relieved that she doesn't have the aches anymore. I guess it just depends. Our systems are all different. I'm 79 and I'd like to live long enough to go to my grandchildren's weddings. And I'd like to spend some years not dealing with cancer. If lobular comes back, "it isn't pretty." That was how my radiation oncologist put it. So I'm taking these pills. Don't like my hair and my thumbs are feeling funny. Don't like the thinning of my brows, but hey, I"m alive and looking forward to Thanksgiving. Recently I went on ChatGPT to get info on recurrence, fed them my stats (stage of tumor, treatment, etc) and it was amazing. I could see the sources spinning as it gathered data from the top medical resources. Some of you might want to try that. The site's free unless you use it all day. (I don' t know if I"m allowed to make suggestions like that on here. If not, sorry) I'm still not sure that all oncologists understand that lobular is different from ductal. Ductal can recur in 2-5 years (and for most, it does not come back) but lobular (if it's going to come back) comes back later and often in a distant site. Gulp. Give me those pills!

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@marshgirl24
I'm so glad to hear your good luck with Anastrozole. I'm almost 83 and also have been on it for 10 months. Maybe that was a good month to start. LOL Ive had almost zero side effects and those mimicked what I could get even if not on Anastrozole. So I'm a happy girl at this point. I had ductal carcinoma, had 30 rounds of radiation, a mastectomy with 15 lymph glands removed, one was cancer. My second round of same thing. First was 12 years ago. Just never know when it might strike again. I don't want a third. So happy that at least there are 2 of us who are doing pretty darn well on Anastrozole. Happy turkey day and God bless you always.

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@tinalove
I have had zero hair loss or thinning and have been taking Anastrozole for 10 months. Hope this helps you, Honey. Blessings.

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Profile picture for anniez1943 @anniez1943

@mimi09
Hooray for you!!! No one knows us better than us. Especially at our age . I say "no" more than I've said it for most of my life. Now it's my favorite word. LOL. We're Oldies but Goodies. You go girl!!! Hugs back at ya!!!!!

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@anniez1943 I’ve never fought so hard and long to project just what you said “no one knows us better than us” as I fight both breast cancer AND a husband of 57 years who’s filed for divorce. It’s the greatest challenge I’ve ever faced. But it is what it is…the hand that was dealt me. I play each card in that hand as knowledgeably as I can every day that is left to me.
We -you and I- know what we’re capable of handling no matter what others think. We risk more than others think is safe and become stronger.
Wish we could sit together over a meal and a very long discussion. I live in SE Pennsylvania. Where are you? We could zoom??

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