← Return to Been to an Epilepsy Monitoring Unit? What’s it like?
DiscussionBeen to an Epilepsy Monitoring Unit? What’s it like?
Epilepsy & Seizures | Last Active: Nov 21 1:02am | Replies (61)Comment receiving replies
Replies to "@santosha thank you, prior to December 2024 I have not seen a doctor since 2015. I..."
Connect

Hi @tbrookhouser
I'm so sorry to hear about everything you've been going through since last December. That sounds incredibly difficult!
You mentioned collapsing but staying conscious throughout your entire life. What you're describing sounds like it could be atonic seizures, where someone suddenly loses muscle tone and collapses but doesn't lose consciousness. I'm sharing a link here with more information about this type of seizure:
Atonic Seizures - Epilepsy Foundation
https://www.epilepsy.com/what-is-epilepsy/seizure-types/atonic-seizures
I can relate to the uncertainty of not knowing what's happening to your body. I lived with temporal lobe epilepsy for decades without knowing it. When I was a teenager, I started having a few strange sensations that lasted a couple of seconds. But all my EEGs came back normal, and I lived a pretty healthy life, rarely affected by what I now know were focal seizures. Then in 2017, after a quite stressful period at work, my seizures became more frequent, longer, and intense. It wasn't until 2019, at age 48, that I finally got the correct diagnosis after my first sleep-deprived EEG, which showed some epileptiform waves.
Since when have you been experiencing these collapses? Have they become more frequent and intense throughout the years?
I'm really hoping your upcoming tests give your doctors the clarity they need to help you. Please keep me posted!
Chris
View Translation