@christyjh Your post sounds like how I felt and thought. I think i had EPI for 2 years before I finally went for help. But the doc who did my colonoscopy suddenly disappeared. I was told that his office and practice didn’t hold office hours but I could talk to the PA. She couldn’t really answer my questions so I decided to get a new doctor! It only took six months of no response from the doctor for me to ditch him! Met my new gastroenterologist yesterday and she was great. I was yelling (supposed to make me feel better.) at anything and everything! I feel so much better knowing that a competent doctor will oversee my newest disease. And I wish you some better luck. I understand your confusion about why and how you got this disease. I’m confused, too. Good diet, exercise, take care if myself, and was very economical (my husband was in the army, so economy was a big part of my life). Guess we’ll just have to go with what my newest doctor said “no one knows” as she shrugged her shoulders. My message to you is to find a new doctor and start again. Listen carefully to what they tell you, especially about treatment. Have the Creon capsules everywhere, just in case. Find the EPI group on FB. Talk to yourself about slowing down—that was hard for me. And listen to the good advise from someone who is a ‘bit’ older than you. I’m 77 to your 65! Keep me posted on how you’re doing and what you’re doing to care for yourself when you’d rather scream and have a hissie fit!