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What to do? Post RP, Gleason 9, Prostate ductal adenocarcinoma
Prostate Cancer | Last Active: Nov 8 11:13am | Replies (59)Comment receiving replies
Yes indeed. I have recently written here, that even the Gleason Score is the "small tip of a very large iceberg" lurking below what appears to be "calm waters." I even asked my urologist early on: "Can my lower-Intermediate Risk Gleason Score of 3 + 4 = 7 (only 6-10% of cells were scored "4"), actually misrepresent a much worse status of the cancer?" He said "no...don't worry...we caught your case early." That all changed with the post-RP pathology report. He then said: "it seems that your cancer is a more aggressive form." I was SO ANGRY. I challenged him on what he said before, to which I replied: "I never said that." UNREAL. He also told me that "Prostatectomy is 100% curative." He later said: "I never said that." I said "you most certainly did...where else and why else would I be able to conjure that quote if you never said it?" He gave me the death stare. My life is in his hands, so I will be less assertive going forward.
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@rlpostrp
When I was only 3+4 after biopsy, my doctor figured that the surgery would cure me. When it showed up to be 4+3 after surgery, they still were not worried. When it came back 3 1/2 years later it was a surprise to them, but they said radiation would be the fix.
It wasn’t until 10 years after surgery that I found out I was BRCA2, So any promises they give would be factually empty.
There are so many different things that can result in the cancer becoming worse, But the doctors like to think they’ve got it, with that next treatment.