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What to do? Post RP, Gleason 9, Prostate ductal adenocarcinoma
Prostate Cancer | Last Active: Nov 8 11:13am | Replies (59)Comment receiving replies
The scan was done prior to the RP and indicated no nodule involvement nor other organ or bones.
It was the surgical pathology that indicated the invasion of 2/9 lymph nodes, SVI, and bladder neck invasion.
The surgeon mentioned that the PSMA scan is only 40% accurate in detection. Absolutely wild.
Replies to "@rlpostrp The scan was done prior to the RP and indicated no nodule involvement nor other..."
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@sriddle1
Yes, unfortunately no test shows what is really going on with 100% certainty but knowing that a test is just 40% accurate is really disheartening. PSMA also can show false positives which is also very concerning since false positive can cause unnecessary treatments or over-treatment. Only full examination of removed gland shows actual status of the PC but still not 100%. There could be some micro metastatic clumps of cells that escaped the gland and there is no way to know IF they escaped or WHERE they went. That is why even patients with low gleaoson score and perfect margins still sometimes develop BCR down the road.
You mentioned that you are "stuck on staging" and it is completely understandable - one tries to grasp the extent and meaning of it all and is looking for any positive detail in avalanche of information that was thrown at you. I remember reading 30 scientific papers with average of 10 pages each and than holding onto one single sentence that showed some "positive" data that gave me some hope - we do what we can to stay sane and strong.
You are doing great < 3 . In a very short span of time you learned a lot and managed to be excellent advocate for you partner ! I am sure that he will now get super care and correct PC treatment with your help and will have great results in the end : )