← Return to Severe pain eating 7 weeks post-RT

Discussion
ranchroad avatar

Severe pain eating 7 weeks post-RT

Head & Neck Cancer | Last Active: 1 minute ago | Replies (44)

Comment receiving replies
Profile picture for metsgirl @metsgirl

@ranchroad I was stage 2 HPV 16 positive tonsil cancer. I had 35 radiation treatments, 70 gy, and 6 cisplatin infusions. I am 8 weeks out. I am experiencing nearly the exact same blisters in reaction to eating. I have subsisted on almost exclusively VHC Boost for the last 12 weeks. It does not cause the reaction. But almost anything else does. Clear blisters back near where the lump on my right tonsil originally was. They subside if I dont eat and come back with anything other than boost or egg drop soup.

I have asked my doctors and they are not concerned either. They say it's part of the healing process and should become less frequent. The location is where the most radiation was delivered.

I am just beginning to get some taste back, but I can't eat. It's really frustrating. My pain level is not as bad as you describe. I only used gabapentin throughout my treatment and was weaned off that three weeks ago.

I really empathize with you!

Jump to this post


Replies to "@ranchroad I was stage 2 HPV 16 positive tonsil cancer. I had 35 radiation treatments, 70..."

@metsgirl Interesting that you can tolerate Boost VHC - that was one of the main things that set it off for me. And also helpful to hear your doctor’s perspective on this. I haven’t been able to get a direct response from my doctor yet, as my 8-week appointment is next week Monday and I’ll ask then. Will update if I hear any other perspective!