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Little to no info from Dr prior to starting Proton 1-2 weeks out
Prostate Cancer | Last Active: Nov 6, 2025 | Replies (13)Comment receiving replies
@robertov
When I had IMRT for 8+ weeks I met with the radiation oncologist Before the treatment and we discussed a lot of issues related to it. I don’t think we discussed many of these side effects that we know about these days.
After that, I did not meet with him again until the treatment was finished. I really didn’t need to meet with him. All the treatment is automatically loaded onto the radiation machine and the techs who run it Know how to position the patient and know when the bladder is not correctly filled (I’m pretty sure this is done by the computer doing the radiation). The RO was never involved in any of that. Same thing was true when I had SBRT radiation on my spine. Spoke to the RO during planning and at the very end.
There was never a PA involved. If I had had issues with the radiation, I would’ve emailed the RO right away, to come to a resolution.
The thing is there really isn’t much to discuss with the RO Once treatment is completed,. If you have issues, further tests are done, and then you speak to someone who will help you make a decision About further treatment.
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@jeffmarc That is true. It is more like conveyor science. The work done up front and executed. At the same time, most of what I do know about prostate cancer, the various treatments, and success and failure rates is what I learn from you Jeff, Jc, and others here. And, of course, my own research. Not from my RO. It would have been nice if he had discussed outcomes, likelihood or recurrence, if so, next steps. What would I feel during the recovery period.
Having said that, the treatment went fine. I never felt the radiation caused any problems. I’m recovering nicely. I am glad to know I don’t have to think about it for 3 months.
Best to all of us, I’m one of the lucky ones, I think. Having access to this technology.