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ADT, maybe not? Anyone opted out of ADT?

Prostate Cancer | Last Active: 2 hours ago | Replies (85)

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@jc76 We only stopped the Zytiga after 3yrs. He's been on hormone therapy, leuprolide, for almost 4yrs and we are just now stopping that, but with strict PSA monitoring.

He has only had that 1 biopsy by Urology Austin in late 2018 that showed Gleason 3+4, 2 out of 12 cores with < 10%. I've never heard the term Decipher before I started reading MCC. David was on Active Surveillance for 2yrs. He was put on hormone therapy in early 2021 because of PSA of 72 & 1 CT that "suggested" lymph node mets. This was the only urologist in Alamogordo, NM. We moved back to & saw Austin Cancer Center Oncologist who added Zytiga, even though their CT showed no metasis a little over a month after 1 Lupron shot! Then when that Dr moved away we went to Texas Oncology. Then we decided just to move back to NM & at least be happy in the mtns! Every Dr only wanted to take up where that 1st Urologist in NM left off!

The next oncology appt is Nov 10 @ a Christus Cancer Ctr to agree to monitor the PSA after stopping ADT. It went down from 0.06 to 0.05. Yay! And yes we did find a great Internist for both of us, who let's me handle David's med mgmt, ha! He is not a proactive patient but very compliant. You probably know how stressful being "proactive" can be & I let all these Drs intimidate me for too long. Thanks so much for all the support from y'all @ MCC!!!

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Replies to "@jc76 We only stopped the Zytiga after 3yrs. He's been on hormone therapy, leuprolide, for almost..."

@jonesfit65 Has no doctor ever mentioned getting a PSMA PET scan done? That is far more accurate than a simple CT scan on determining where the cancer is. How about an MRI scan of the prostate to see how many lesions there are and what PIRADS score each one has? Beyond doing hormone treatment which has suppressed the cancer and driven the PSA down to 0.05, there should also be some discussion about using radiation to permanently kill as much cancer as possible. Be sure to bring all these issues up with the doctors at the Christus Cancer Ctr.