← Return to Little to no info from Dr prior to starting Proton 1-2 weeks out

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Profile picture for robertov @robertov

@jeffmarc I misspoke. I had a video appointment at the time of selecting an option. Where I left thinking Proton Therapy was my preference. From there, everything happened without much interaction and no in person meetings. Until the 3rd day of my treatment. The PA I interacted with I never met in person. TBF, I had a 5 fx proton so there wasn’t much time. Now that it is over, my follow up is 3 months. When I suggested an earlier meeting, I was told it wasn’t necessary. Now, I’m happy with the results so far. Healing well. But there was none of the personal connection, I was expecting. More interaction with this forum 🙂

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@robertov
When I had IMRT for 8+ weeks I met with the radiation oncologist Before the treatment and we discussed a lot of issues related to it. I don’t think we discussed many of these side effects that we know about these days.

After that, I did not meet with him again until the treatment was finished. I really didn’t need to meet with him. All the treatment is automatically loaded onto the radiation machine and the techs who run it Know how to position the patient and know when the bladder is not correctly filled (I’m pretty sure this is done by the computer doing the radiation). The RO was never involved in any of that. Same thing was true when I had SBRT radiation on my spine. Spoke to the RO during planning and at the very end.

There was never a PA involved. If I had had issues with the radiation, I would’ve emailed the RO right away, to come to a resolution.

The thing is there really isn’t much to discuss with the RO Once treatment is completed,. If you have issues, further tests are done, and then you speak to someone who will help you make a decision About further treatment.