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Chris Gautier, Volunteer Mentor avatar

Which Seizure Trigger Is Your Hardest Battle?

Epilepsy & Seizures | Last Active: Nov 25 8:39am | Replies (22)
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Profile picture for methel @methel

@santosha

In reply to your question about seizure triggers: Caffeine is my issue. If I’m faithful with my meds, the most I will have are minor focal seizures which remain localized. (My last one, years ago, only 1/2 of my tongue twitched for 10 seconds.) But after 2 cups of great brewed coffee, I once woke up on the floor after losing consciousness with a seizure which generalized. Caffeine is everywhere: coffee, OTC meds, soft drinks, chocolate. Just not in ‘energy drinks’. So it means compulsively reading labels and quizzing waitstaff, what’s really in this ?

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Replies to "@santosha In reply to your question about seizure triggers: Caffeine is my issue. If I’m faithful..."
Chris Gautier, Volunteer Mentor | @santosha | Nov 8 7:13am

@methel
Hi there!
Thank you so much for sharing your experience.
Cutting caffeine from your diet must have been quite a challenge—it's in so many things! I really related to what you said about "compulsively reading labels and quizzing waitstaff." I do the exact same thing because of my gluten intolerance, which can trigger my seizures. It's so exhausting sometimes, isn't it?
I wonder if decaf coffee might be an option? It still has tiny amounts of caffeine, but your doctor would know best if that would be okay for you.
Have a nice weekend!
Chris

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