@predniso141

Not true... there probably aren't any rheumatologists that monitor that site. The patients in the UK are usually seen by a primary care doctor and not a rheumatologist. The charity that sponsors that site promotes research and raises awareness for the cause of PMR and GCA.

There are mostly patients on that site. There are just a few patients who claim to be experts but they aren't medical professionals and certainly not a rheumatologist. I think their intentions are good but they shouldn't give medical advice on the internet. The site does have a disclaimer that says information from that site does not substitute for medical advice from your doctor,

There is no tapering method that is research based that works the best for everyone. The correct way to taper off prednisone is an individualized approach based on many individualized factors.

There is universal agreement medically that the taper off prednisone should be slow and it shouldn't be stopped abruptly after prolonged use. Doctors are aware of the difficulties with tapering off Prednisone and are working on this problem.
https://www.healio.com/news/rheumatology/20250220/tsunami-of-effortbrings-biologics-to-the-forefront-in-giant-cell-arteritis-pmr.
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Bhaskar Dasgupta, MD is a well respected rheumatolgist in the UK. He is cited on the above link along with rheumatologists from the USA. I think doctors all over the world would agree that long term treatment of PMR/GCA with Prednisone is NOT an ideal solution to the problem.