← Return to Anyone lost the ability to walk due to peripheral neuropathy?

Discussion
Comment receiving replies
Profile picture for wenner @wenner

@sidegate83 Hi Marie, I did enjoy reading your story. I'm amazed at how different it has been for each of us. Maybe the doctors are entitled to charge so much. All 3 of us with PN and completely
different onsets and all heading in different directions. I've been told mine is oxenal (long nerves) I do notice that most who write in say small nerves. Please correct me if I'm going astray. I've also done a lot of reading on covid injections & long covid.. I'd had 5 inj & had a bad dose of long covid, thus Covid is what I am blaming for where I am now. Thankyou Mr Covid Wendy @wenner

Jump to this post


Replies to "@sidegate83 Hi Marie, I did enjoy reading your story. I'm amazed at how different it has..."

@wenner
Hi, I developed AIDP that has now gone into CIDP, Chronic inflammatory demyelinating polyneuropathy, as a complication of Covid. It is very painful. It came on 3 weeks after I had covid and was so painful that I thought I would loose my mind. Neurologist verified it via EMG and nerve conduction study. She wants me to take Lyrica or gabapentin but I have resisted due to dementia concerns. I have no clue how I will end up. You couple this with Arachnoiditis and I may be screwed. Best of health to you.
Carolyn