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Non small lung cancer PDL 1 90% mutation MET CX 14 skipping

Lung Cancer | Last Active: 12 hours ago | Replies (4)
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Thanks for your reply . Immunotherapy has not been succesfull for this mutation after 2 years to my regret.
If progression I will receive a pill called tepotinib and I hope that using this pill will give better results.

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Replies to "Thanks for your reply . Immunotherapy has not been succesfull for this mutation after 2 years..."
hatterasj10202 | @hatterasj10202 | 12 hours ago

@andries240644
I have the same mutation with no PDL-1.

Have had two courses of Tepmetko with major resolution of many lesions.
The side effect profile has prevented continued therapy with this drug. 76.% of patients discontinued drug due to severe edema. As I had and lymphedema which was intractable and took 2-3 months to resolve. I had no other side effects and shall try to send photos with severe edema and resolution.
I am off to Mayo Clinic for their wisdom with is drug. I may take it again in an off label dosing.
Be strong!

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