Well I did it.!My Right Upper Lung was robot assisted surgically removed. It went well, but recovery took a lot longer that I expected, 3 months instead of 1. I found out 6 months later that they broke my rib while prying them apart for access. My lung congestion was improved by 80%, but I still was 20% below where I expected to be. I finally went back to my pulmonologist thinking that there was something we were missing. I started a LABA+ICS inhaler and my lungs cleared up immediately because, it seems I developed asthma but it was masked by the BE. Then my kid got a lung cold and I got it too. It turns out it was another bacterial lung infection that my body had trouble fending off. It lasted 2 weeks and the I took antibiotics and it went away. It was demoralizing for me because, I hoped to be done with bacterial lung infections. At the moment I'd say I'm 95% of where I'd like to be regarding lung health. I'm also working with an immunologist to figure out why my immune system is still low functioning from the Cancer Immunotherapy.
Bit by bit I'm putting myself back together the best I can. All in all, it was a good choice for me to "Cut it out!", but it wasn't the home run I'd hoped for.
Wishing the best to everyone dealing with BE,
-Shonney
@shonney Thanks for the update! Helpful info. I hope you continue to improve.