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DiscussionDouble mastecomy and trying to decide whether to do chemo or not
Breast Cancer | Last Active: Nov 7, 2025 | Replies (32)Comment receiving replies
Replies to "@mistymar thank you for sharing! I just confirmed I would do chemo. It was a very..."
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@waterlilies1899 it was weird with the teeth. It was after the second infusion and I yawned and felt the lower teeth shift. It just changed enough to where one of my lower teeth now hits the back of an upper tooth. I’m sure there’s also a difference to the bite but hasn’t caused any problems so far. Dentist is just keeping an eye on it to make sure it doesn’t damage the upper tooth.
As to how I felt, my infusion was on Thursday and they put the Neulasta thing on which injected me on Friday. (This is where it gets a little tricky - I’ll explain later). First one, started having a lot of pain Saturday evening. Sunday I was really bad - slept all day, started Tylenol -lasted till Tuesday. Oncologist said to start ibuprofen at next infusion and if still problems, would script codeine. Next 2, Sunday was still a bad day, just tired, didn’t feel good, slept a lot but fine by Monday afternoon. I thought the last infusion was going to kill me - actually used the codeine I had left over from surgery for 2 days, still felt bad when I saw oncologist 2 weeks later just couldn’t recover. NOW - don’t panic. The explanation: I had been put on resuvostatin for cholesterol 3 months before all this and had been having problems with it. I stopped it about 4 days before the first infusion (but again, still in my system). Was off it for second and only back on shortly before third. So at 4th, I had been back on it almost 5 weeks. I really think that it either caused it’s own complications or reacted with the chemo to cause my problems. After they sent me to cardiologist who found nothing, I came off the statin and recovered in a couple weeks. So while yes, there were side effects, I really feel the 2 middle ones were representative of my actual side effects and that was 1 day of feeling really crummy and just babying myself and staying in bed. Keep some ibuprofen handy, take the loratidine as recommended (both help with the muscle pain). I never had to use any of the anti vomiting medications they gave me.