Connect
← Return to Onward with durable remission
Discussion
Comment receiving replies
@jeffmarc I have read a couple of your posts and was curious what stage you were first diagnosed at. I too have brca2, I am 46. I just found out in February. Mom had breast cancer at 48 and grandma around the same age, both died in their fifties from the breast cancer.
I unfortunately also have a blood disorder so many of the treatments for prostate cancer might not be available to me.
You have had a few reoccurrences, so that is why I was wondering what stage you were diagnosed at.
Did you know about brca2 before diagnosis?
Replies to "@jeffmarc I have read a couple of your posts and was curious what stage you were..."
@sle5122
I forgot to mention in the other message
You might want to attend an ancan.org Advanced prostate cancer meeting. They hold them weekly. There will be one next Tuesday at 6pm eastern. They are very familiar with BRCA2 people even have a separate email group for those that have it. If you get there five or 10 minutes early, they will talk to you first and discuss what your issues are and what the best possible treatments are. They have 15 years experience, helping people with their prostate cancer. You will usually get more information than your doctor will give you.
You need to install GoTo Meeting to attend. Go to the website and sign up and you will get a newsletter every week that is really informative about latest things going on in prostate cancer treatment. To join the meeting just put in answercancer or 222583973.
Connect
@sle5122
In 2010 I was 62 and a biopsy showed Gleason 3+4. My father died of prostate cancer and he had radiation so I decided to have surgery. After surgery they told me it was a Gleason 4+3. It was only stage two. 3.5 Years later it came back, I had a Lupron shot 2 months before 8+ weeks of radiation. 2 1/2 years later it came back and I went on Lupron. I became castrate resistant 2.5 years later and added biclautamide. 1.25 years later went on Zytiga, which kept my PSA down for 2 1/2 years. After some AFIB Issues I switched over to Nubeqa. The last 23 months I’ve been undetectable. I became stage four about six years ago, had a metastasis on my spine zapped 2 years ago I did not find out I was BRCA2 Until five years ago. That’s why it keeps coming back, I’ve had four reoccurrences.
My grandfather died of pancreatic cancer. Both of my aunts on my mother side had breast cancer. One of them died of it as did her daughter. My mother never had any issues with cancer, which was a surprise since I got BRCA2 from her.
To make things even more complex, my father died of prostate cancer Which doubled my and my brother’s chance of getting it. Because of the BRCA2, I got it at 62 while my brother didn’t get prostate cancer until 75, He doesn’t have BRCA2.