← Return to Anyone with constant migraines, unrelieved by any treatment?

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@colleenyoung

Welcome to Connect, @jjgardner.
As a person who suffers from migraines, you are unfortunately not alone. Let me introduce you to @mkell13 @jenapower @lauriedr and @kdubois who understand first-hand what you're going through. You may also be interested in joining this discussion group.

- Migraines http://mayocl.in/2d3qTUi

JJGardner, did your migraines start at the same time as the infectious disease became apparent? Or do you have a longer history of migraines? We look forward to getting to know a bit more about you.

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Replies to "Welcome to Connect, @jjgardner. As a person who suffers from migraines, you are unfortunately not alone...."

Thank you so much for responding to me. The sensory motor issue happened suddenly while in the tropics, I had been able to walk 5-11 miles daily, work out, one day I was overcome by the heat and humidity became unable to walk, talk, dizzy, tolerate being outside. I should also say that I was getting all kinds of bug bites, fish were dying in the oceans, my husband and I had been in the swamps with all kinds of animals.
I started getting migraines a few months after, then developed other symptoms such as peripheral neuropathy, numbness and tinglingling in face, body, loss of strength hands,motor, cough, SOB, eye pain, double vision, spasms, the headaches became called status migraines, without relief, nausea,
Mult other symptoms, bedridden, went to many different doctors who ordered all kinds of tests- still my neurologist and infectious disease doctor unclear what I have butane been treating me for Lyme - like disease with antibiotics for a month, still symptoms persist.
Have had MRI, Ct scan, blood work, next step is spinal tap,
Don't think its autoimmune, still going infectious route.
Thanks for your help

I'm sorry, I wasn't finished when I hit the post reply.
I'm not sure whether the migraines are related to the other issues going on, and the doctors are unclear as well.
Again thank you for any help or assistance you might have