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Anyone diagnosed with alpha-Gal syndrome?

Autoimmune Diseases | Last Active: 3 days ago | Replies (13)

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I have had Alpha Gal Syndrome for eight years. I now have a torn rotator cuff and torn bicep that really needs surgery. However, most hospitals use heparin and other "pork or beef" related drugs during surgeries and I not only have Alpha Gal but also have, "Pork Cat Syndrome" which will make my throat close almost instantly if consumed. So I am terrified of surgery. In Maryland, most hospitals haven't a clue what I am talking about, including all of my physicians from cardiologists down to primary care. I am 78 years old and very active, still teach at the college, bowl, walk, etc., but now my right arm which is my dominant side, is in constant pain and I am too frightened to have a shoulder cuff "replacement." Any comments negative or positive?

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Replies to "I have had Alpha Gal Syndrome for eight years. I now have a torn rotator cuff..."

@donnamac I was officially diagnosed with Alpha Gal in September of this year. I've been struggling with the inability to eat meat since 2020. My symptoms have been gastrointestinal only, cramps, bloating, gas, and diarrhea. It typically takes 7 to 10 days to run its course. However what I wanted to share was I had reverse shoulder replacement of my right shoulder in May 2025. I personally had no side effects of any medications. Since I didn't know I had Alpha Gal it was not part of the conversation with my doctor. I am a active 70 year old male.