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Chris Gautier, Volunteer Mentor avatar

Which Seizure Trigger Is Your Hardest Battle?

Epilepsy & Seizures | Last Active: Nov 25 8:39am | Replies (22)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@gregd1956
Hi Greg,
Thank you for sharing your story.
I'm glad to hear you're feeling better since your accident. It's wonderful that you've found strength and purpose in your journey after your TBI. Your positive attitude is truly inspiring!
If I understood correctly from this post and others you've shared, you still experience seizures from time to time. I'm curious—do you notice any warning signs that a seizure might be coming? If so, what are those signs, and how do you manage them?
Thank you again for being so open about your experience.
Chris

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Replies to "@gregd1956 Hi Greg, Thank you for sharing your story. I'm glad to hear you're feeling better..."

@santosha

In reply to your question about seizure triggers: Caffeine is my issue. If I’m faithful with my meds, the most I will have are minor focal seizures which remain localized. (My last one, years ago, only 1/2 of my tongue twitched for 10 seconds.) But after 2 cups of great brewed coffee, I once woke up on the floor after losing consciousness with a seizure which generalized. Caffeine is everywhere: coffee, OTC meds, soft drinks, chocolate. Just not in ‘energy drinks’. So it means compulsively reading labels and quizzing waitstaff, what’s really in this ?